Insights

Should your patient centricity include the carer experience?

Our mission is to increase empathy which leads to patient-centric changes. We do this through putting you in the patient’s shoes. But what about conditions where the impact of disease is felt by more than just the patient?

Our mission is to increase empathy which leads to patient-centric changes. We do this through putting you in the patient’s shoes. But what about conditions where the impact of disease is felt by more than just the patient?

A different perspective

When it comes to our company goal of putting the patient first, we are no strangers to taking a different approach. Alongside our various immersive patient experiences in multiple therapy areas, another foray

into a unique perspective began with RSV (Respiratory Syncytial Virus), where participants assumed the role of a parent caring for a child with RSV as opposed to simulating the challenges of being the patient. The reception to this new approach was extremely positive with 96% of participants being inspired to think in new ways about the condition, and their approach to patient-centricity.

Why Caregivers?

In the UK, it is estimated one in five people are providing care, however, research suggests the number could be much higher as many people who are caring for someone, do not identify as a ‘carer’.

  • A son visiting his elderly mother, who lives with dementia, every morning before work to wash and dress her.
  • Parents caring for their child who has epilepsy.
  • A teenager food shopping, cooking, and cleaning for themselves and their younger siblings as their mother lives with depression.

These are all examples of loved ones taking on the role of caring for others beyond what is expected of their normal relationship. But if you speak to those people, they will say ‘It’s just love, I’m not a carer’. In speaking with these people, we can delve deeper, we also gain insight from our patients’ loved ones so we can truly understand the impacts being felt by everyone.

Mornings were always very stressful because I was running my business at that time, and I can see now I was really snappy with the children. I needed my wife to help to get the children ready to school but she couldn’t. So, I gave up the business to become more of a carer for my wife. Things are slightly better now, even though financially they’re really bad.”

Liam, 53 carer for his wife who lives with MS

Expanding the horizon

While patient immersion has proven invaluable, considering the caregiver’s perspective opens doors to a broader understanding of the patient’s journey, and may prove to unlock a new avenue for discussion amongst sales teams, clinicians and other roles. Caregivers often juggle multiple responsibilities, from managing medications to providing emotional support. By stepping into these roles, professionals may gain insights that could reshape the landscape of patient care.

As we return to the question, “Should you step into the shoes of a carer?” we envision a future where our immersive experiences explore the boundaries of patient and caregiver roles. The success of the RSV experience has paved the way for us to explore similar programs for various conditions, acknowledging the vital role caregivers play in healthcare.

Putting people first

In the evolving landscape of the pharma and life science industry, truly effective outcomes are driven by understanding the needs of the patient. By understanding the intricate dynamics of caregiving, we are encouraging professionals to take one step further to bridge the empathy and understanding gap to deliver truly exceptional results.

The success of our previous change in approach through stepping into the shoes of a parent serves as a strong platform for us to deliver a unique approach to patient-centricity. Get in touch: We would love to hear your thoughts on how you could see us taking this approach to helping you meet your patient-centricity goals.

Get in Touch

If you are interested or have questions about A Life in A Day, please reach out and contact us.


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