As patient centricity and engagement continue to evolve alongside wider changes in healthcare, some organisations remain the steadfast foundations of patient advocacy. We have the privilege of working side by side with industry-shaping organisations that champion patients and keep them at the centre of every conversation.
Pioneers leading the change
There are hundreds of patient advocacy groups, support organizations, communities, networks and charities globally who are all raising the profile of the patient in healthcare. Below is just a small selection of those we have enjoyed working with recently alongside others we’ve seen within the industry.
For those newly joining the sector or trying to understand why initiatives like A Life in a Day are so transformative, patient understanding is not merely a buzzword – it is a driver for action and change. When approached correctly, it means embedding patient experiences into every stage of what you do in order to drive better outcomes (for both your own KPIs and the patient outcomes – everybody wins!)
ISPEP (International Society for Patient Engagement Professionals)
For a topic that is human-centric, peer support and community is a must. Enter ISPEP (The International Society for Patient Engagement Professionals).
ISPEP serves as a central hub for Patient Engagement Professionals (PEPs). Serving as a hub that connects professionals across biopharma, medtech and patient advocacy internationally, ISPEP acts as a community that drives positive change, tackling major industry challenges like securing budgets, proving tangible impact, establishing patient engagement as a rigorous scientific discipline.
What we love about ISPEP: For patient engagement professionals working in smaller groups, or those passionate about the patient experience who want to raise the voice, they create a support platform and community to empower everybody to do just that!
If you have had the chance to meet the ISPEP team, including Emma Sutcliffe, you will understand the passion they have when it comes to driving the patient first message!
Connect with them: Follow their latest insights and community updates on the ISPEP Hub.
The A Life in a Day Patient Community & Partners
We have to recognise the contribution and fantastic work of many of the organisations we work with when developing our patient experiences. Some of them are listed here (partner page), but the support goes much further. Within our own space, our patient community group is the pillar of everything we do. Within that group are influencers who are advocating for their conditions, multi-hat individuals who both live and work within the condition they have, and hundreds of patients who have provided
PiCC United (Patient Involvement and Collaboration Community United)
Meaningful advances in patient centricity requires practical, ethical, and accessible collaboration between all groups, regardless of size, scale and representation. PiCC United is a global, patient-led non-profit organisation dedicated to ensuring just that.
PiCC United brings together commercial partners and the patient community by offering streamlined solutions such as simplified contracting, capacity-building toolkits, and strategic advisory support.
What we love about PiCC United: Their work helps bridge the gap between these groups to ensure partnering with a diverse group, to get best outcomes, is a seamless, compliant reality.
Connect with them: Explore their resources, advocacy toolkits, and partnership models directly on the PiCC United Website.
Other Shoutouts
The patient-centric shift extends beyond a few groups and includes the work of so many – a single post online would not fit them all! However, here are some more key groups driving change across the industry.
- EFPIA Patient Think Tank: Working at a regulatory level, this forum brings pharmaceutical leaders and patient groups together to co-create industry-wide guidance and white papers that help to bring the patient perspective into the drug development pipeline.
- Patient Advocacy Leadership Collective (PALC): A global hub designed to support patient advocacy organisations by providing access to essential health resources and developmental tools – optimising their work with patient communities.
Why this matters to A Life in a Day (and you)
A Life in a Day delivers the human experience behind healthcare in a way unlike anything else. By placing you directly into the shoes of a patient to reveal the challenges beyond the immediate observations delivers insights in a way no clinical data could uncover.
By aligning with global champions like ISPEP and PiCC United, we can ensure these insights and lived experiences gain a greater voice, can be elevated even further, and drive true change as an industry.
Working together, we are stronger.
